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Rank: Advanced Member  Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Hi Everyone
Well I have finally had my appt to start infliximab... 25th march, I have been waiting weeks and off work at the moment with a really bad flare so it cant come quickly enough!
I dont know an awful lot about it re side effects, success rate etc so if anyone has any advice or experience of it, would love to know!
Thanks a lot luv Ceri xx
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Ceri,
good luck with the new Meds.
really hope this is the one for you.
i am currently waiting for Anti-TNF as well ... and was given literature on Humira the one chosen for me. but to be honest after the state i got in starting Methotrexate i think i will skip over the possiblre side affects else i will drive myself crazy !!
go for it with a positive attitude and let's hope we hear you are doing well on it.
take care and let us know once you start.
Suzanne x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Ceri I have had Infliximab and it completely gave me back my life. The results were amazing from day one. Feeling the stuff being infused gave me a huge sense of well being that I haven't really felt since. I didn't have any side effects and as far as I know it is still considered to be a very acceptable drug choice. Unfortunately for me Infliximab lost its efficacy after 12 months or so and I moved on to Enbrel. I'm a little surprised they haven't suggested something more immediate to get things under control before the first infusion, a depomedrone or methyl pred infusion. It will be an uphill battle for the first infusion of Infliximab. Hope you get good results  Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Rank: Advanced Member Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Thanks Lyn and Suzanne for your replies. There doesnt seem to be many on here who have tried infliximab so fingers crossed it will work for me as well as it did for you Lyn. Still off work and suffering with my hips now as well so need something! Take care both Luv Ceri xx
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Rank: Advanced Member Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Ceri,
i meant to say on my last post ... when i last saw Rheumy Nurse a fortnight or so ago for my second session re Humira,
i had a Depo injection, and the room i was in had two people sat in comfy chairs having their infusion. they looked really relaxed and comfy so it does look a good way forward to me.
let's hope it works well for you,
think we're both ready for the next step to get our RA under control.
Suzanne x
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Rank: Advanced Member Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Thanx Suzanne, and lots of luck with the Humira xx
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Rank: Advanced Member Groups: Registered
Joined: 9/5/2010 Posts: 364 Location: mid glamorgan
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Thanks Rose
Good luck as well when you start Humira hope your well enough soon! xx
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Rank: Advanced Member  Groups: Registered
Joined: 12/7/2009 Posts: 262
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Good luck Ceri,
hope infliximab works wonders for you.
Diane x
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